Research, Resource & Education
Multiple Sclerosis, Lupus, Fibromyalgia
Definitions, Exercise, Precautions & Diets
Table of Contents
Exercise is beneficial for people with multiple sclerosis (MS), lupus, and fibromyalgia. According to a source called PubMed.gov, physical activity can reduce the relapse rate of MS, improve mobility and walking outcomes, and decrease lesion volume. However, more research is needed to confirm the effect of exercise on the disease’s progression in MS patients.
For lupus patients, exercise can improve physical functions of damaged body parts such as the heart, lungs, bones, and joints. It can reduce inflammation and weight gain, as well as improve mental health.
For fibromyalgia patients, exercise is an essential treatment that helps reduce pain and fatigue. It is suggested to start with gentle exercises like walking and to gradually increase intensity to build up strength.
It is recommended that if you’re new to exercising or have pre-existing health concerns, you should consult your physician before beginning any exercise program. This will ensure that you receive personalized recommendations tailored to your unique health status, and potentially prevent any complications that may arise.
It is important to remember that the information presented here and in books is of an educational nature and should not be used in lieu of medical advice from your doctor and healthcare team.
Most of the research is from NIH – National Institute of Neurological Disorders and Stroke and National Institute of Arthritis, Musculoskeletal and Skin Disease, as well as the CDC, unless otherwise specified.
Definitions & Systems
Multiple Sclerosis - Central Nervous & Immune System
- An unpredictable disease of the central nervous system, multiple sclerosis (MS) can range from relatively benign to somewhat disabling to devastating, as communication between the brain and other parts of the body is disrupted.
- Many investigators believe MS to be an autoimmune disease — one in which the body, through its immune system, launches a defensive attack against its own tissues.
- In the case of MS, it is the nerve-insulating myelin that comes under assault. Such assaults may be linked to an unknown environmental trigger, perhaps a virus.
- Most people experience their first symptoms of MS between the ages of 20 and 40; the initial symptom of MS is often blurred or double vision, red-green color distortion, or even blindness in one eye.
- Most MS patients experience muscle weakness in their extremities and difficulty with coordination and balance.
- These symptoms may be severe enough to impair walking or even standing. In the worst cases,
- MS can produce partial or complete paralysis.
- Most people with MS also exhibit paresthesia’s, transitory abnormal sensory feelings such as numbness, prickling, or “pins and needles” sensations.
- Some may also experience pain.
- Speech impediments, tremors, and dizziness are other frequent complaints.
- Occasionally, people with MS have hearing loss.
- Approximately half of all people with MS experience cognitive impairments such as difficulties with concentration, attention, memory, and poor judgment, but such symptoms are usually mild and are frequently overlooked.
- Depression is another common feature of MS.
Lupus - Immune System
- Lupus (also called systemic lupus erythematosus) is a disorder of the immune system.
- Normally, the immune system protects the body against invading infections and cancers.
- In lupus, the immune system is over-active and produces increased amounts of abnormal antibodies that attack the body’s tissues and organs.
- Lupus can affect many parts of the body, including the joints, skin, kidneys, lungs, heart, nervous system, and blood vessels.
- The signs and symptoms of lupus differ from person to person; the disease can range from mild to life threatening.
- Initial symptoms of lupus may begin with a fever, vascular headaches, epilepsy, or psychoses.
- A striking feature of lupus is a butterfly shaped rash over the cheeks.
- In addition to headache, lupus can cause other neurological disorders, such as mild cognitive dysfunction, organic brain syndrome, peripheral neuropathies, sensory neuropathy, psychological problems (including personality changes, paranoia, mania, and schizophrenia), seizures, transverse myelitis, and paralysis and stroke.
Fibromyalgia
- Fibromyalgia is a relatively common disorder, which occurs predominantly in women, that is characterized by widespread aching and stiffness in muscles.
- Although there have been numerous studies of fibromyalgia, its etiology has remained unclear, but it is generally believed that central pain processing abnormalities are involved.
- Fibromyalgia is a long-lasting or chronic disorder that causes muscle pain and fatigue (feeling tired).
- If you have fibromyalgia, you have pain and tenderness throughout your body.
- Sometimes you may have two or more chronic pain conditions at the same time, such as:
• Chronic fatigue syndrome. Endometriosis.
• Irritable bowel syndrome. Interstitial cystitis.
• Temporomandibular joint dysfunction (TMJ).
• Vulvodynia.
Causes
Multiple Sclerosis
- The ultimate cause of MS is damage to myelin, nerve fibers, and neurons in the brain and spinal cord, which together make up the central nervous system (CNS).
- But how that happens, and why, are questions that challenge researchers.
- Evidence appears to show that MS is a disease caused by genetic vulnerabilities combined with environmental factors.
- Although there is little doubt that the immune system contributes to the brain and spinal cord tissue destruction of MS, the exact target of the immune system attacks and which immune system cells cause the destruction isn’t fully understood.
- Researchers have several possible explanations for what might be going on.
- The immune system could be:
- Fighting some kind of infectious agent (for example, a virus) that has components which mimic components of the brain (molecular mimickry)
- Destroying brain cells because they are unhealthy
- Mistakenly identifying normal brain cells as foreign.
- The last possibility has been the favored explanation for many years.
- Research now suggests that the first two activities might also play a role in the development of MS.
- There is a special barrier, called the blood- brain barrier, which separates the brain and spinal cord from the immune system.
- If there is a break in the barrier, it exposes the brain to the immune system for the first time.
- When this happens, the immune system may misinterpret the brain as “foreign.”
• Genetic susceptibility
• Sunlight and vitamin D
• Smoking
• Infectious factors and viruses
• Autoimmune and inflammatory processes
Lupus
- Lupus can be hard to diagnose because it has many symptoms that are often mistaken for symptoms of other diseases.
- Many people have lupus for a while before they find out they have it.
- If you have symptoms of lupus, tell your doctor right away.
No single test can tell if a person has lupus, but your doctor can find out if you have lupus in other ways, including:
- Medical history.
- Tell your doctor about your symptoms and other problems.
- Keep track of your symptoms by writing them down when they happen.
- Also, track how long they last.
- Family history of lupus or other autoimmune diseases.
- Tell your doctor if lupus or other autoimmune diseases run in your family.
- Complete physical exam.
- Your doctor will look for rashes and other signs that something is wrong.
- Blood and urine tests. The antinuclear antibody (ANA) test can show if your immune system is more likely to make the autoantibodies of lupus.
- Most people with lupus test positive for ANA, but, a positive ANA does not always mean you have lupus.
- If you test positive for ANA, your doctor will likely order more tests for antibodies that are specific to systemic lupus erythematosus (SLE).
- Skin or kidney biopsy.
- A biopsy is a minor surgery to remove a sample of tissue.
- The tissue is then viewed under a microscope.
- Skin and kidney tissue looked at in this way can show signs of an autoimmune disease.
Fibromyalgia
Doctors don’t know the exact cause of fibromyalgia. Researchers continue to study fibromyalgia and think the following events may contribute to the cause of the disorder:
- Stressful or traumatic events, such as:
o Car accidents.
o Repetitive injuries.
o Illness. - Sometimes, fibromyalgia can develop on its own.
- Fibromyalgia tends to run in families, and some scientists think that a gene or genes could make you more likely to develop fibromyalgia.
- The genes could make you react strongly to things that other people would not find painful.
- Anyone can get this disorder, though it occurs most often in women and often starts in middle age.
- If you have certain other diseases, you may be more likely to have fibromyalgia. These diseases include:
o Rheumatoid arthritis.
o Systemic lupus erythematosus (commonly called lupus).
o Ankylosing spondylitis (spinal arthritis).
(NIH)
Certain factors may trigger a fibromyalgia flare-up, such as changes in:
- Diet Hormones
- Physical or psychological stress schedule
- Temperature or weather
- Stressful events, surgery, or accidents can make fibromyalgia symptoms worse.
- Lack of sleep
- Exercise – Too much or too little
(Medical News Today)
SYMPTOMS– Also see Definition
Multiple Sclerosis
The first symptoms of MS often include:
- Vision problems such as blurred or double vision or optic neuritis, which causes pain in the eye and a rapid loss of vision.
- Weak, stiff muscles, often with painful muscle spasms
- Tingling or numbness in the arms, legs, trunk of the body, or face.
- Clumsiness, particularly difficulty staying balanced when walking.
- Bladder control problems, either inability to control the bladder or urgency.
- Dizziness that doesn’t go away
MS may also cause later symptoms such as:
- Mental or physical fatigue which accompanies the above symptoms during an attack
- Mood changes such as depression or euphoria
- Changes in the ability to concentrate or to multitask effectively
- Difficulty making decisions, planning, or prioritizing at work or in private life.
Lupus
- Muscle and joint pain.
- You may experience pain and stiffness, with or without swelling.
- This affects most people with lupus.
- Common areas for muscle pain and swelling include the neck, thighs, shoulders, and upper arms.
- Fever.
- A fever higher than 100 degrees Fahrenheit affects many people with lupus.
- The fever is often caused by inflammation or infection.
- Lupus medicine can help manage and prevent fever.
- Rashes.
- You may get rashes on any part of your body that is exposed to the sun, such as your face, arms, and hands.
- One common sign of lupus is a red, butterfly-shaped rash across the nose and cheeks.
- Chest pain.
- Lupus can trigger inflammation in the lining of the lungs.
- This causes chest pain when breathing deeply.
- Hair loss.
- Patchy or bald spots are common.
- Hair loss could also be caused by some medicines or infection.
- Sun or light sensitivity.
- Most people with lupus are sensitive to light, a condition called photosensitivity.
- Exposure to light can cause rashes, fever, fatigue, or joint pain in some people with lupus.
- Kidney problems.
- Half of people with lupus also have kidney problems, called lupus nephritis.
- Symptoms include weight gain, swollen ankles, high blood pressure, and decreased kidney function.
- Mouth sores.
- Also called ulcers, these sores usually appear on the roof of the mouth, but can also appear in the gums, inside the cheeks, and on the lips.
- They may be painless, or you may have soreness or dry mouth.
- Prolonged or extreme fatigue.
- You may feel tired or exhausted even when you get enough sleep.
- Fatigue can also be a warning sign of a lupus flare.
- Anemia.
- Fatigue could be a sign of anemia, a condition that happens when your body does not have red blood cells to carry oxygen throughout your body.
- Memory problems.
- Some people with lupus report problems with forgetfulness or confusion.
- Blood clotting.
- You may have a higher risk of blood clotting.
- This can cause blood clots in the legs or lungs, stroke, heart attack, or repeated miscarriages.
- Eye disease.
- You may get dry eyes, eye inflammation, and eyelid rashes.
Fibromyalgia
The main symptoms of fibromyalgia are pain and tenderness throughout your body.
Symptoms may also include:
- Trouble sleeping. Morning stiffness.
- Headaches.
- Painful menstrual periods
- Tingling or numbness in hands and feet.
- Problems with thinking and memory (sometimes called “fibro fog”). (NIH)
Other symptoms of fibromyalgia may include:
- Extreme sensitivity to pain, bright lights, smoke, and certain foods.
- Stiffness when staying in the same position for long periods
- Muscles spasms
- Extreme tiredness
- Fatigue
- Slow or confused speech
- Irritable bowel syndrome (Medical News Today)
Treatments
Multiple Sclerosis
Currently there is no cure for MS.
- Many individuals do well with no therapy at all, especially since many medications have serious side effects and some carry significant risks.
- Steroid drugs may be prescribed to treat acute symptoms of an attack, such as inflammation; they do not affect the course of the disease over time.
• Several drugs have been approved by the U.S. Food and Drug Administration (FDA) to treat one or more forms of multiple sclerosis, either by decreasing attack frequency and severity, treating relapses, delaying disease progression. Some drugs are taken intravenously, some by infusion, and some oral;- All drugs should be prescribed and closely monitored by specially trained physicians, as some medications have serious side effects.
- Spasticity, which can occur either as a sustained stiffness caused by increased muscle tone or as spasms that come and go, is usually treated with muscle relaxants and tranquilizers such as baclofen, tizanidine, diazepam, clonazepam, and dantrolene.
- Physical therapy and exercise can help preserve remaining function, and individuals may find that various aids — such as foot braces, canes, and walkers — can help them remain independent and mobile.
- Avoiding excessive activity and avoiding heat are probably the most important measures patients can take to counter physiological fatigue.
- If psychological symptoms of fatigue such as depression or apathy are evident, antidepressant medications may help.
- Other drugs that may reduce fatigue in some, but not all patients. I
- Although improvement of optic symptoms usually occurs even without treatment, a short course of treatment with intravenous methylprednisolone (Solu-Medrol) followed by treatment with oral steroids is sometimes used.
Lupus
There is no cure for lupus.
- Treatment is symptomatic.
- With a combination of medication, rest, exercise, proper nutrition, and stress management, most individuals with lupus can often achieve remission or reduce their symptom levels.
- Medications used in the treatment of lupus may include aspirin and other nonsteroidal anti-inflammatory medications, antimalarials, corticosteroids, and immunosuppressive drugs.
Avoid:
- Direct sunlight or/and use sunscreen
- Bactrim and Septra (sulfamethoxazole and trimethoprim)
- See Diet for Supplements and foods to avoid
Fibromyalgia
You and your doctor can treat fibromyalgia with medicines, lifestyle changes, and complementary therapy.
- However, fibromyalgia can be hard to treat. It’s important you find a doctor who is familiar with the disorder and its treatment.
- Doctors may prescribe one or more of the following medicines to help treat the symptoms of fibromyalgia:
- Ibuprofen, aspirin, or naproxen you can buy over the counter.
- Narcotic medicines to treat severe pain.
- Duloxetine and minacipran to help the pain and fatigue.
- Pregabalin to help treat nerve pain.
- Making lifestyle changes can also help you manage your fibromyalgia, including:
- Getting enough sleep.
- Exercising.
- Adjusting your work demands.
- You can also try complementary therapies such as:
- Massage therapy.
- Movement therapy.
- Chiropractic therapy.
- Acupuncture.
- Diet supplements.
Exercise
Multiple Sclerosis
According to PubMed.gov, exercise and physical activity have been associated with reduced relapse rate, mobility disability and its progression, lesion volume, and improved neuro-performance, particularly walking outcomes. This evidence provides a positive, yet preliminary, picture for exercise having possible effects on markers of disease modification and progression in MS. (NCBI: PubMed.gov)
USNews: Most MS patients don’t exercise enough, according to a survey in the June 2015 issue of Acta Neurological Scandinavia.
- It’s understandable since multiple sclerosis, an autoimmune disease that damages the myelin sheath (covering) around the neurons in the central nervous system, can cause symptoms such as fatigue, overheating, muscle weakness, tremors and other disabilities, all of which can make exercising especially challenging.
- That’s why if you have MS, you’ll want to choose an exercise routine you not only enjoy, but one that also fits your particular needs.
- “You should start by seeing a physical therapist who will help adjust exercises to fit your capabilities,” suggests Dr. Michelle Fabian, assistant professor of neurology in the Corinne Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai Hospital in New York.
- “An important rule in MS is to start out small and work up gradually,” (US News)
For the most part, those with MS will follow an exercise routine, just as anyone else would.
- Aerobics, strengthening, stretching and balance exercises should be a regular part of your routine.
- Water aerobics, swimming, tai chi, and yoga are also exercises that often work well for people with MS.
- You should always consult with your doctor before starting an exercise routine and physical therapy to get you started, especially if you are new to exercising.
Things to consider or precautions:
- Make sure there are no slippery floors or tripping hazards is important in keeping a safe environment.
- Start slow and warm up prior to your exercise routine.
- Taking a walk may be a good way to start or may even be all you can do at that particular time. That is OK.
- Don’t push yourself if you are just starting out a program.
- Grab bars or a solid surface to reach for may be needed if you have balance deficits
- If you feel sick, have exacerbations or pain, stop and do not push through the symptoms.
- Listen to your body.
- Some people with MS are sensitive to the heat.
- When your body temperature rises, the symptoms get worse.
- Here are some tips:
- Just like people without MS, you should not exercise outside in the hottest times of the day between 10 and 2, and not at all when the temperature and humidity are high.
- Drink plenty of cold water/liquids. Stay hydrated.
- Stop if symptoms worsen or cool down before continuing.
- Wear cooling collars, bandanas or vests or wrap a wet towel around your neck.
- If swimming, use a pool with a temperature in the low 80s.
- Take cool or tepid showers.
Types of Exercise to Try according to WebMD:
- Aerobics.
- Not only does it get your heartbeat up, it lifts your mood, too.
- Walking, running, and biking are all good.
- If you have leg weakness or other problems moving, try something like rowing or water aerobics.
- Stretches.
- They’re good for anyone with MS, but they’re most helpful if you have painful muscle stiffness and spasms.
- Aside from regular stretches, yoga and tai chi are great ways to build strength and flexibility.
- They can also help you relax and fight stress.
- Strength training.
- If your physical therapist says it’s OK, use weights or resistance exercises to build your muscles.
- The stronger you are, the easier it’ll be to move around. (WebMD)
Mayo Clinic: Exercise and multiple sclerosis
NIH- NCBI – PubMed: Is physical exercise a multiple sclerosis disease modifying treatment?
US News: The Latest on What Exercise Works Best to Combat MS
Lupus
Here’s why exercise is helpful for managing lupus from the Lupus Foundation of America: Five benefits of exercise for managing lupus:
- Exercise can strengthen parts of your body that may be affected by lupus — the heart, lungs, bones and joints.
- Exercise helps reduce inflammation by regulating some of the chemicals involved in the inflammation process.
- Exercise can help control weight gain caused by use of corticosteroid medications and keep your body conditioned.
- Exercise, and even simple low-impact movement, will make muscles less stiff, increase your range of motion and help you reduce the risk of heart disease.
- Exercise may boost your mental health, making it easier to cope with life stressors and potentially improving mood and self-esteem.
- In addition, exercise can reduce fatigue.
- You should always consult with your doctor before starting an exercise routine and physical therapy to get you started, especially if you are new to exercising.
The following are suggestions before starting an exercise program from the article: Lupus Foundation of America: Five things to know before starting an exercise routine
- Outdoor activities can be highly beneficial to people with lupus.
- However, it’s best not to jump right into a rigorous exercise program.
- It’s better to ease your body into the idea of working out.
- Lupus patients can and should take part in physical activity.
- Before doing this, you should discuss with your physician or physical therapist what the best type of exercise will be for you.
- Whether you are beginning (or renewing) an exercise routine now, or whether you have been working out throughout the year, there are a few key things that all people with lupus should know about exercise.
Before heading out the door, remember the following five points (Lupus Foundation of America):
- Walking, swimming, bicycling, low-impact aerobics, certain types of yoga, Pilates, and stretching can help tone muscles and minimize joint aggravation.
- Exercises such as these are excellent for preventing osteoporosis, the disease in which individuals lose bone mineral density.
- Although, at times, exercise may be the last thing on our minds, it is good to stay as active as possible.
- This prevents the muscles that are no longer being worked from becoming weak.
- It is also important to vary your exercise routine in order to promote the strengthening of different muscle groups throughout your body.
- In addition, exercise is good for relieving stress.
- And, as you may know, stress can trigger a lupus flare.
- However, it is vital to pace yourself!
- When you try to do too much, that increases your feelings of stress and can also contribute to the disease flaring, which may then create even more stress.
- Don’t push yourself too hard.
- You have to find a nice balance that works for you.
- It is important to allow your body to rest and recuperate.
- If you experience severe pain, or stiff and swollen joints, you should avoid or limit activities that contribute to feelings of pain.
- Always take breaks if needed!
- It is a good idea to limit exercises that are high-impact, such as jogging, weightlifting and high-impact aerobic exercises.
- These can place strain and pressure on the joints.
- If you do experience pain and joint aggravation, there are several things you can do.
Ways to relieve pain and soreness after exercise:
- Joint and muscle pain can be relieved by heat and/or cold application.
- However, moist heat has been shown to soothe painful joints much better than dry heat.
- Try taking a warm shower, using a warm moist towel or soaking in a hot bathtub to soothe aches and pains.
- Other methods to relieve pain can include behavioral techniques, such as relaxation, meditation, focused breathing, low-impact yoga, Tai Chi and guided imagery.
- These methods allow you to draw your mind’s attention away from the pain and to focus on relieving stress and tension that can intensify the pain experience.
- These techniques are safe and easy to do at home and allow you to control your pain rather than suffer through it.
- Ice or cold applications are advisable only for strained or twisted muscles or injuries.
- Follow the RICE (Rest, Ice, Compression, and Elevation) method to relieve pain, reduce swelling, and speed healing.
- Begin right after the injury occurs and continue for at least 48 hours.
- Work with your healthcare team and develop a plan that benefits you while also limiting any discomfort.
- Finally, make sure you protect your skin against the sun’s rays.
- Slather on the sunscreen and wear a broad brimmed hat before you walk out that door! (Lupus Foundation of America)
According to MedicineNet, Exercise will help you manage lupus but you should avoid outdoor exercise in the sun because sunlight can trigger flares. Cover up by wearing a hat, long-sleeved shirts, and long pants, and use sunscreens with a sun protection factor of at least 15 if you walk or bike outdoors. (MedicineNet)
Lupus Foundation of America: Five benefits of exercise for managing lupus
Lupus Foundation of America: Five things to know before starting an exercise routine
Fibromyalgia
- Although pain and fatigue may make exercise and daily activities difficult, it is important for you to be as physically active as possible.
- Research shows that regular exercise is one of the most useful treatments for fibromyalgia.
- If you have too much pain or fatigue to do exercise, you should begin with walking or other gentle exercise.
- Over time you can build your strength. (NIH)
You should always consult with your doctor before starting an exercise routine and physical therapy to get you started, especially if you are new to exercising.
- You may be reluctant to try exercise for fear that it will make your pain worse.
- But starting low and going slow helps keep symptoms from flaring up.
- Consider starting with walking two minutes a day and gradually work your way up to 30 minutes two or three times a week.
- It’s crucial to pace yourself. If you do too much on your good days, you may have more bad days.
- If an exercise causes you increased pain for more than two hours, reduce the time or intensity of that exercise next time. (MayoClinic)
Along with low impact aerobic exercises, strengthening and stretching, other exercises such as yoga, tai chi and palates can help both physically and mentally.
- If you have access to a pool, water aerobics/therapy has shown to have a good outcome in reducing symptoms.
- According to WebMD, exercise can help maintain bone mass, improve balance, reduce stress, and increase strength.
- Getting regular exercise can also help control your weight, which is important to reducing the pain of fibromyalgia.
- “Moving your body may be the last thing you feel like doing, but you have to believe that it really does help.
- “It’s hard at first, but it does get easier.”
- Whether you’re walking or participating in an exercise class, these exercise tips can help prevent injury or pain:
- Exercise at the time of day that you feel best.
- For many people with fibromyalgia, this is between 10 a.m. and 3 p.m. But your best time may be different.
- Stretch.
- This can help warm up muscles and minimize pain after exercise.
- You can stretch while lying down, standing, or sitting in a chair.
- Some people may find it helpful to stretch in a warm bath or shower.
- Take small steps.
- When walking, try not to swing your arms too much or take big steps.
- Walk on flat, even surfaces to reduce your risk of falling.
- Ease into strength training.
- For strengthening exercises, consider using elastic bands instead of weights and start with a single set of repetitions.
- Pace yourself.
- When doing stretching or strengthening exercises, alternate sides often and take a short rest between repetitions.
- Take breaks.
- Again, listen to your body.
- “When first starting, rest after just a few minutes of exercise,” Matallana says.
- “Don’t be afraid to go as slowly as you need to.”
- Pamper yourself afterward.
- When you’re finished exercising, take a hot shower or bath.
- Exercising in a warm pool is another good way to start being active.
- Warm water has a soothing effect on muscles and joints and may make exercise less painful.
- But even if you start in a pool, it’s still a good idea to work towards a ground-based workout. (WebMD)
- Exercise at the time of day that you feel best.
Possible Diets
Multiple Sclerosis
Multiple Sclerosis - General
- There is no evidence that a specific diet can prevent, treat or cure multiple sclerosis (MS), according to Mayo Clinic.
- Some special diets can actually be harmful because they contain too much of certain vitamins or not enough of others.
- Make sure you talk to your doctor or dietician before making significant changes to your diet.
- There is some research that says Vitamin D may have positive effects on the immune system and help with cell growth.
- Vitamin A, Biotin and omega-3 fatty acids have also been investigated, but there are no definitive studies that show any of these supplements can make a difference in symptoms.
- It’s important for people with MS to make healthy food choices
• Not getting enough vitamins and minerals can worsen MS symptoms.
• Skipping meals may contribute to low energy levels.
• Some MS symptoms such as depression and MS treatments such as steroids can cause weight gain.
• Weight gain can lead to more health concerns, such as joint stress and cardiac and respiratory problems.
• Alcohol can intensify common MS symptoms, such as imbalance and lack of coordination. (Mayo Clinic)
There has been research on several diets listed below, but again, there is no evidence that any of these diets will make a difference. Eat a healthy, balanced diet including low fat, high fiber, low sugar, unprocessed food and limit alcohol intake.
Make sure you talk to your doctor or dietician before making significant changes to your diet.
The following diets are mentioned in Multiple Sclerosis News Today: Multiple sclerosis diet: Foods to eat and avoid
Paleo
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Multiple Sclerosis News Today: Multiple sclerosis diet: Foods to eat and avoid
Mediterranean
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Multiple Sclerosis News Today: Multiple sclerosis diet: Foods to eat and avoid
Swank
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Multiple Sclerosis News Today: Multiple sclerosis diet: Foods to eat and avoid
Gluten Free
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Multiple Sclerosis News Today: Multiple sclerosis diet: Foods to eat and avoid
Lupus
Lupus - General
- John Hopkins Lupus Center states that generally, doctors recommend a diet composed of about 50% carbohydrates, 15% protein, and 30% fat.
- However, since people with lupus often experience symptoms like weight loss or gain, inflammation, osteoporosis, kidney disease, high blood pressure, and atherosclerosis, certain specific nutritional concerns may also need to be taken into consideration. (John Hopkins Lupus Center)
In general, follow a healthy, anti-inflammatory diet that includes fruits, vegetables, fish and omega 3 fatty acids while avoiding processed foods, saturated fats and animal fats. With lupus, there are foods that can increase your symptoms.
Below is a list from Dr. Axe and John Hopkins Lupus Center that describe the reasons for avoiding certain foods.
Make sure you talk to your doctor or dietician before making significant changes to your diet.
According to Dr. Axe, some foods that can contribute to lupus and make autoimmune disease symptoms worse include:
- Gluten:
- Gluten is a type of protein found in wheat, barley, rye and most flour-containing products.
- Gluten intolerance is common because it’s difficult for many people to digest properly.
- This can increase leaky gut syndrome, inflammation or trigger a lupus flare-up. (See Gluten Free Diet above under MS)
- Trans fat and sometimes saturated fats:
- These fats are found in fast food, many fried foods and packaged/processed foods, and can lead to inflammation and heart problems.
- Some people with lupus have a hard time metabolizing saturated fats and should limit cheese, red meat, creamy foods and packaged foods.
- Added sugar:
- Too much sugar can overstimulate the immune system and increase pain.
- High-sodium foods:
- Because lupus can damage the kidneys — in fact, lupus nephritis is a type of kidney disease caused by systemic lupus erythematosus — it’s best to try to keep sodium and salt levels low to prevent fluid retention, worsened swelling and electrolyte imbalances.
- Alcohol and too much caffeine:
- These can increase anxiety, worsen inflammation, damage the liver, increase pain, and cause dehydration and sleep-related problems.
- Certain legumes:
- Alfalfa seeds and sprouts, green beans, peanuts, soybeans, and snow peas contain a substance that has been shown to trigger lupus flare-ups in some patients (although not all).
- Negative reactions in certain patients are believed to be caused by the amino acid L-canavanine. (Dr. Axe)
- John Hopkins also has some insight on supplements and foods to avoid:
- Garlic – Scientists believe that three substances in garlic—allicin, ajoene, and thiosulfinates—rev-up your immune system by enhancing the activity of white blood cells, particularly macrophages and lymphocytes.
- Scientists also believe that the sulfur components of garlic help to prevent and suppress cancer in the body.
- For this reason, garlic is often used as a supplement to combat colds and infections.
- Unfortunately, the enhancement of immune response is counterproductive in people with autoimmune disease such as lupus, because their immune system is already overactive.
- As a result, people with lupus and lupus-like signs should avoid cooking with garlic and adding it to food.
- Of course, a tiny amount of the herb will not harm you but try to consciously avoid preparing foods with garlic.
- Alfalfa Sprouts –
- Alfalfa sprouts contain an amino acid called L-canavanine that can increase inflammation in people with lupus by stimulating the immune system.
- As a result, people with lupus and similar autoimmune conditions should avoid alfalfa sprouts completely.
- Melatonin and Rozerem (ramelteon)
- Melatonin is a hormone secreted by the pineal gland in your brain that regulates other hormones in the body that control how your body reacts to daily patterns of light and dark.
- Melatonin release is suppressed during the light hours of the day and stimulated by dark, helping you stick to patterns of nighttime sleep and daytime wakefulness.
- As a result, melatonin is often used as a sleep aid over other medications.
- Melatonin and melatonin-containing supplements should be avoided in people with lupus and other autoimmune disorders because they may stimulate the immune system.
- In addition, people with these conditions should also avoid the prescription sleep aid Rozerem (ramelteon), because it mimics melatonin in the body.
- It is important that you understand the necessity of avoiding both melatonin and Rozerem, since sleep aids are often used to help people with fibromyalgia and other conditions to attain normal sleep patterns.
- Echinacea
- Echinacea is often used as a dietary supplement to boost the immune system against colds and other illnesses.
- However, because Echinacea boosts your immune system, it may cause flares in people with autoimmune diseases such as lupus.
- As a result, people with lupus and other autoimmune diseases should avoid these supplements.
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Dr. Axe: 7 Natural Lupus Treatments and Remedies
Johns Hopkins Lupus Center: Diet
John Hopkkins Lupus Center: 5 Things to Avoid if You Have Lupus
Foods to Eat or Avoid
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Anti-Inflammatory
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Fibromyalgia
Elimination Diet.
- There is no specific diet for fibromyalgia, but there are certain foods that can trigger symptoms.
- A healthy diet, such as the Mediterranean diet, Gluten free diet (See MS Diets) or a heart health DASH diet (See Cardiac) is a good place to start.
- If you are not sure if there is a food that is making your symptoms worse, the best way to figure this out is trying an Elimination diet.
- This consists of taking certain foods out of your diet for 2-3 weeks, and then introducing them back in one at a time to see which ones may trigger you fibromyalgia symptoms.
- Some of the most common culprits are: Gluten, Dairy, Soy, Refined/added sugar, Citrus fruits, Pork, Peanuts, Corn, Alcohol, Eggs, Packaged/processed or Fast foods, Some seafood/shellfish and Certain nightshades.
- The list below is from several sources of the most common foods to eat or avoid but listen to your body.
- What causes a flare-up in one person may be fine for another and vice-versa.
- Also keep in mind if you have other comorbidities that you may also have, and dietary needs for those diseases as well.
Make sure you talk to your doctor or dietician before making significant changes to your diet.
Foods to Eat or Avoid
Make sure you talk to your doctor or dietician before making significant changes to your diet.
MS, Lupus, Fibromyalgia Guide
Multiple Sclerosis (MS)
Celiac Disease Foundation – Gluten Free Foods – https://celiac.org/gluten-free-living/gluten-free-foods/
Cleveland Clinic – https://my.clevelandclinic.org/health/articles/8465-exercise–multiple-sclerosis (4/21/19)
Healthline – The Paleo Diet – https://www.healthline.com/nutrition/paleo-diet-meal-plan-and-menu
Mayo Clinic – (MS) https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/expert-answers/exerciseand-multiple-sclerosis/faq- 20094108 (4/21/19)
Mayo Clinic – Is there a MS diet? https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/expertanswers/multiple-sclerosis- diet/faq-20057953
Multiple Sclerosis News Today – MS Diet and Nutrition – https://multiplesclerosisnewstoday.com/living-withms/
ms-diet-nutrition/
National Multiple Sclerosis Society. https://www.nationalmssociety.org/ Exercise Accessed 1/14/2015. (Cleveland Clinic 4/21/19)
NCBI: PubMed.gov (MS) https://www.ncbi.nlm.nih.gov/pubmed/27219279. (4/21/19)
(NIH) National Institute of Neurological Disorders and Stroke – https://www.ninds.nih.gov/Disorders/All-
Disorders/Multiple-Sclerosis-Information-Page#disorders-r1
Swank Diet – http://www.swankmsdiet.org/the-diet
Swank Diet – Quick Reference https://static1.squarespace.com/static/530fbb50e4b07533b73e6c73/t/558dac37e4b06f2955f8e028/1435348023
782/diet-quick-reference.pdf
U.S. Department of Veterans Affairs. Multiple Sclerosis Centers of Excellence. Planning Your Activities and
Designing an Exercise https://www.va.gov/ms/ Program Accessed 1/14/2015. (Cleveland Clinic 4/21/19)
US News – The Latest on What Exercise Works Best to Combat MS- https://health.usnews.com/healthcare/
patient-advice/articles/2017-09-25/the-latest-on-what-exercise-works-best-to-combat-ms (4/21/19)
Web MD – Exercise & Multiple Sclerosis – https://www.webmd.com/multiple-sclerosis/multiple-sclerosis-exercise#1
MS, Lupus & Fibromyalgia
Lupus
CDC – Center for Disease Control and Prevention – https://www.cdc.gov/lupus/index.htm
Dr. Axe – 7 Natural Lupus Treatments and Remedies – https://draxe.com/top-5-lupus-natural-treatment-remedies/
Dr. Weil – Anti-inflammatory Diet – https://www.drweil.com/diet-nutrition/anti-inflammatory-diet-pyramid/
John Hopkins Lupus Center – Diet – https://www.hopkinslupus.org/lupus-info/lifestyle-additional-information/lupusdiet/
and Things to Avoid – https://www.hopkinslupus.org/lupus-info/lifestyle-additional-information/avoid/
Lupus Foundation of America – Five benefits of exercise for managing lupus –
https://www.lupus.org/resources/five-benefits-of-exercise-for-managing-lupus#
Lupus Foundation of America – Five things to know before starting an exercise routine
https://www.lupus.org/resources/five-things-to-know-before-starting-an-exercise-routine#
MedicineNet – What Are Safe Exercises with Lupus?
https://www.medicinenet.com/what_are_safe_exercises_with_lupus/ask.htm
(NIH) National Institute of Neurological Disorders and Stroke – https://www.ninds.nih.gov/Disorders/All-
Disorders/Neurological-Sequelae-Lupus-Information-Page
Fibromyalgia
Everyday Health – https://www.everydayhealth.com/fibromyalgia/diet/fibromyalgia-what-eat-what-avoid/
Mayo Clinic – Fibromyalgia: Does exercise help or hurt? https://www.mayoclinic.org/diseasesconditions/
fibromyalgia/in-depth/fibromyalgia-and-exercise/art-20093376
Medical News Today https://www.medicalnewstoday.com/articles/315646.php
(NIH) National Institute of Arthritis, Musculoskeletal and Skin Disease – https://www.niams.nih.gov/healthtopics/
fibromyalgia
WebMD – Fibromyalgia Exercise, One Step at a Time – https://www.webmd.com/fibromyalgia/features/fibromyalgiaexercise-
one-step-time#1